I get my van back today!!!!!!!!!!!!!!!!!!!!!!!!!!
Wednesday, May 6, 2009
Tuesday, May 5, 2009
I wanna be a farmer!!!!
OK, the title of my blog... "I wanna be a farmer" is a quote from my daughter. We went to my brothers house yesterday to drop off some things and he had baby chicks!!! Their son is Joey's age. Well, he is now a chicken farmer! Daddy helped him get it all set up. So we got to see the baby chicks yesterday. They are going to be egg laying chickens. Abby is so excited and has decided that she wants to be a farmer one day too! Little stinker! We got to see baby kitties, we got to experience their new horn on the 4 wheeler AND we got to play with them in the yard... so all this equals "I'm going to be a farmer just like Logan!" Ha! she has did get some of the "city girl" out of her to make that work! She's all Diva!!! :)
Monday, May 4, 2009
Fun on Sunday...
We walked into church on Sunday morning to see beach balls flying every where! It was great! Umm... my kids sure loved it! LOL!
Sunday, May 3, 2009
Been three weeks...
Well, I am kind of excited this morning! We are going to get to actually go to church! It has been three weeks now since we have been because of sickness and medical stuff. So, it's relieving that we are all healthy and can go! If you can't make it... join us live at 10:45 on www.farmlandfriends.org have a great day every one! ~Mindy
Saturday, May 2, 2009
busy day...
Joey got to try out his new big boy booster seat! Can you see the Joy?
We got our little landscaping done. Abby loves birds so we made a little area with houses and feeder in the front yard.
Miss Abby enjoyed blowing the dandilions. :)Friday, May 1, 2009
Howdy world!
I have been stuck in my house today and STIR crazy! I didn't realize how bad it stinks to have one vehicle down and KNOW you can't go any where! Whew! kids have been crazy hyper today to... I think I'm shaking! LOL! Can't wait to go to sleep tonight!
Cinci trip
Well, We made it to Cincinnati finally! I will start with our VERY good news. Our van is repairable! It was going to be $614 to fix it. HOwever, Jeff remembered that we had an extended warranty on the van and it is STILL good! Thank you God!!! So, we only pay $100 for all the work they are going to be doing! We told them to go over it with a fine tooth comb to be sure that's all that needs repaired while it is there!
Now onto medical. Our trip brought mixed feelings for us. We have a direction we are going now, but not sure that it's as we would like to go! Apparently it appears Joey is storing fat in his muscles. Now this is all taken from labs and testing done at Riley. So, our confidence in these thoughts are NOT really high as we are finding a lot of what we were told there is NOT correct. THey are going to have all the labs and tests sent there and go over them with a fine tooth comb and re-exam many of the slides and what not of the tissue samples that they took. They are thinking he may have something called Lipid Storage Myopathy. There is a couple of MAJOR blood tests that Riley never did that they will be doing that will give us answers in this direction as to whether this is possible. From their, they are also thinking an MRI/MRS of his complete body. Head to toe. This will show them too what's going on with the muscle and may mean we'd avoid another muscle biopsy being done. They really DON'T want to do that to him. We don't have a lot of understanding of what this all means, but we do know it is a direction to go. Please pray for wisdom. The doctor that we saw yesterday is going to consult with Dr. Degraw and Dr. Wong. These doctors specialize in this kind of stuff.
They were VERY encouraged with Joey's energy though. One of the down sides to the disease that we are talking about is that they have major energy depletion. In this case, he felt that Joey was hyper active. Umm... he was seeing Joey at MILD activity! Ha! Joey really does NOT have energy crashes so, that's positive at this point! There is something still going on in his little body, so we do have to push forward, but we have more confidence that it isn't as severe as it once was. So, this is good and encouraging! God has worked in His little body and we are waiting to see the complete work! :)
Miss Abby did AWESOME yesterday at the doctor. we were so proud of her! Thanks for all your prayers. Our next trip to Cinci is May 13th. This will be for a video swallow study. ~Mindy
Now onto medical. Our trip brought mixed feelings for us. We have a direction we are going now, but not sure that it's as we would like to go! Apparently it appears Joey is storing fat in his muscles. Now this is all taken from labs and testing done at Riley. So, our confidence in these thoughts are NOT really high as we are finding a lot of what we were told there is NOT correct. THey are going to have all the labs and tests sent there and go over them with a fine tooth comb and re-exam many of the slides and what not of the tissue samples that they took. They are thinking he may have something called Lipid Storage Myopathy. There is a couple of MAJOR blood tests that Riley never did that they will be doing that will give us answers in this direction as to whether this is possible. From their, they are also thinking an MRI/MRS of his complete body. Head to toe. This will show them too what's going on with the muscle and may mean we'd avoid another muscle biopsy being done. They really DON'T want to do that to him. We don't have a lot of understanding of what this all means, but we do know it is a direction to go. Please pray for wisdom. The doctor that we saw yesterday is going to consult with Dr. Degraw and Dr. Wong. These doctors specialize in this kind of stuff.
They were VERY encouraged with Joey's energy though. One of the down sides to the disease that we are talking about is that they have major energy depletion. In this case, he felt that Joey was hyper active. Umm... he was seeing Joey at MILD activity! Ha! Joey really does NOT have energy crashes so, that's positive at this point! There is something still going on in his little body, so we do have to push forward, but we have more confidence that it isn't as severe as it once was. So, this is good and encouraging! God has worked in His little body and we are waiting to see the complete work! :)
Miss Abby did AWESOME yesterday at the doctor. we were so proud of her! Thanks for all your prayers. Our next trip to Cinci is May 13th. This will be for a video swallow study. ~Mindy
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