Cincinnati Update...

Sorry this is late! I forget that some of you read here and not the caring bridge page! Abby did OK during the appointment at Cincinnati. Genetics is going to begin seeing her the next time that we go just to ensure that she doesn't need any thing, etc.. Joey had a great visit. They were VERY excited to see how good he is doing. They were just in awe of the changes in him!! Thank you God!!!! I wanted them to see it and I said nothing because I wanted to hear them say they saw it! If that makes sense. Just waited for their observation basically. They did say they want him to revisit with Neuro because he appears to have weakness on his right side some times causing him to drag his leg on occasion. This can be a neurological issue with the brain. Then, they also were concerned about his eye sight. They could see a definite issue there. They want him seen by a specialist there at Cincinnati. There is one who has a clinic a bit closer than the main hospital, so they are sending us there. I have neuro scheduled for two weeks from now, but I haven't heard from the eye doc. May call them on Tuesday or Wednesday if I have not heard from them. Thanks for the prayers for our family. It means more than you know! Also, thanks for checking in on us! God bless all! -Mindy