We had Jeff to the ER tonight. About 6 months ago, he started feeling more and more run down. Just very tired. We both just thought it was between ministry at the church and the things going on with the kids that had him more tired. However, it has progressed. he was sick about 3 weeks ago with a really bad cold. Knocked him out for two days. After this, he started feeling as though his body was just heavy and he was exhausted all the time with VERY LITTLE endurance. We thought maybe it was the virus hanging on... but he progressed again. about a week ago, he started having tingling in his legs from his hips to his feet. Today, he started having pain in his thighs. The pain he described is that he feels like he's just run like crazy on a treadmill and pushed his muscles too far. He is fine laying down, but any standing or walking, it progressively gets worse. Also, doing anything makes him sleep. Going to the grocery today wiped him out to the point of needing a long nap.
We spoke with the kids genetics doctor a week ago. It raised concern. This after noon
i spoke with the kids genetic doc over the phone. He wanted a CPK level checked. From what I understand, this will show them the break down of the muscle. The kids has always been normal but they check it to be safe with anything odd. Jeff had normal levels. So, we are fine for now. They are going to get Jeff into a Nuero to ensure that every thing is alright and begin diagnostic testing on him.
Likely, what the kids are dealing with is what jeff has. There has been confirmed Muscular sclerosis in his family now. His mom and sister are both having issues. So, no surprise but not easy to swallow. Jeff does not have insurance that will cover any of this. His health and my own prevent us from having good insurance. So... Please pray that the nuero will take us and do the testing and that we'll be able to cover the expenses.
Your prayers are priceless and we are so thankful!
~Mindy Pfohl~
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