The ROC....

Well, we will be arriving at the Riley Outpatient Center bright and early tomorrow morning. We were thankful that one of the hotels that works with Riley had a room open for us to come tonight and stay locally... we have been so wiped out since this last week. So, we won't have to get up at the crack of dawn! Yeah!!! Joey sees Neuro tomorrow. We are hoping for a good report. He actually had a great day today! He's been trying to clap. For those of you who do not know, this is a huge task for him! He has so much trouble controlling his hands and well... he is trying so hard!!! Go Joey go!!! We get so excited over his accomplishments! It's so cute to watch! He just gets so excited and those arms just get to going!!! We had a bit more luck with the food today. He's gone back to square one with this round of sickness. He did eat from at least one of his meals today! I was relieved about that. He even picked up a gerber puff to put it in his mouth! Yeah! I believe they are going to be doing some more genetic stuff tomorrow, so we'll probably be there awhile. I know that Dr. Walsh (Nuerogenetisist) was wanting to send out another urine screening. Joey's first one showed stresses that are caused by Mito, but again, nothing that was definitive. I think they have some blood work scheduled, probably considerably less though since they had done most of that while he was admitted. However, I'm sure that they will be rechecking some things anyways. Poor guy! I don't know whether it is fortunate or unfortunate, but he's starting to get used to it and not fuss as much.

Abby is struggling severely with her asthma today. She keeps having attacks so bad she can't get her words out. Thankfully, her puffer has been able to do the trick and we haven't had to rush to the doctor... HOWEVER... I will be calling tomorrow because she shouldn't be having this much trouble! Well, I guess I should get some sleep before the big adventure tomorrow!!