Well, today, my daughter learned to do a summer salt. I'm sorry to disappoint you all... I couldn't provide footage of daddy demonstrating to Abby how to do one. It was a sight to behold! That's why you NEVER EVER let the batteries go dead on your digital! =) Oh it was TRULY exciting! Abby enjoyed it. She kept yelling "I'm rolling daddy!" Too adorable. Today, we talked with a genetic counselor at Riley about some concerns we are having with Abby (knee pain, muscles shaking, muscle fatigue) They have pushed her next appointment up sooner. The exciting news is that the mito clinic is open now at Riley! I was OVER JOYED to hear that. It will be easier to get ahold of doctors now. Anyways, Abby will be seen Oct. 29th. to decide what we can do or may need to do to help her. We go to Riley tomorrow for bubby to see his metabolic doc. This will be the very first time we have actually made it to clinic. He usually has to come see us in house because Joey's been admitted for one reason or another. I'll be glad to see him as an out patient. We also get to go to the safe escape store in Riley tomorrow. This is a great thing for people who have children with special needs. You can visit at www.escapesafe.org This will be our first time going, but I hear that they have wonderful things to aid in many aspects at home. It will be interesting to walk through the process. Anyways, we'll see what the day brings. We were supposed to meet a couple of mom's who have children with mito as well, but Abby sounds junky. I think it is allergies... but being a mom who "dreads" to hear runny noses... we decided it best to meet another time. More updates tomorrow!
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